Sloane Taylor - Sweet as Honey, Hotter Than Hell


September 18, 2009

DRINK FOR A CURE

Sounds like an odd, but fun way to combat a little known disease that strikes thousands of people worldwide. Please join us,

September 19, 2009
8:00pm to Midnight
Molly Malone’s Irish Pub
7652 Madison Street
Forest Park, IL

The donation for this event is $50.00 per person and includes all your drinks and food.

Drink for a Cure began in 1998 when Christian Banke was diagnosed with Marfan syndrome. Christian died in 2002 while undergoing surgery. He was the second person stricken in the Banke family. They soon learned most people, including doctors, had not heard of Marfan syndrome. Millions of people across all geographical and racial groups can have Marfan syndrome. To make the world more aware and raise money for this under-funded disease, the Banke and Yario families hold a yearly fundraiser that raises awareness for this silent killer by donate the funds to the National Marfan Foundation.

Here’s a little background on the disease.
Marfan syndrome is a disorder of connective tissue. Connective tissue holds all parts of the body together and helps control how our bodies grow. Because connective tissue is found throughout out bodies, Marfan syndrome can occur in many different parts of us. The features are most often found in the heart, blood vessels, bones, joints, and eyes. The lungs and skin may also be affected. Marfan syndrome does not affect intelligence.

How does someone contract Marfan syndrome, you might ask?
Each child of a Marfan victim has a 50 percent chance to inherit the disorder. Sometimes a spontaneous mutation occurs during the formation of sperm or egg cells, resulting in a baby with Marfan syndrome. Two unaffected parents have only a 1 in 10,000 chance of having a child with Marfan syndrome. Approximately 25% of cases are due to a spontaneous mutation at the time of conception.

Your donations do help.
Pediatric Awareness and Educational Programs are in place to make the medical community, all health professional, the media and the public conscious of this disease for early detection. Your contribution, not matter what size, is greatly appreciated. The National Marfan Foundation is a 501 © (3) charitable organization therefore all donations are tax deductable. Their Tax ID Number is 52-1265361. To learn more, please go to www.marfan.org or call 1-800-862-7326.

I hope you can join us Sept. 19. You’ll have a great time while helping with an excellent cause.

Sloane Taylor
Sweet as Honey…Hotter than Hell

Sloane said @ 8:27 am | General